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Has Anyone Had Bad Lower Back Pain? It Prevents Me From Walking Or Standing
I have ATTR wild type. I was dx in 2019 and have been on Vyndamax since then.
I have similar problems with my back
I can't walk more than about 100 feet and stand for less than 5 minutes before I have to sit down
Last year I had an ablation that helped for about a month.
… read more
What Symptoms Do You Have With Bladder Amyloidosis?
I Receive A Prompt That Says "bad Request" Whenever I Click On A Fellow Member To Respond! Thanks In Advance For Replying.
I Have Been On Vyndamax For 57 Days And I Found Out The Next Shipment As Been Delayed And I Will Miss At Least One Day. What Is The Harm.
My cardiologist told me that missing one day should not be an issue.
Has Anyone Had AFib And Had A Cardiac Version And But Was Not Able To Get Back In Rhythem.Jeffrey
I have wild type Amyloidosis and am 80 years old
Oh No.4 ablations-that is awful,,Cardio Versions have not worked so I was thinking an ablation would. This is probably a side affect of Amliodosis.Jeffrey
Can Amyloid Cause Cancer?
Amyloidosis itself is not considered a type of cancer. However, there is some overlap between amyloidosis and blood cancers. For instance:
- AL amyloidosis is caused by abnormal plasma cells, which… read more
My Name Is Takashi. I Have Been Losing Weight Recently.
My name is Takashi. I have been losing weight recently. I have lost 3kg in the past 6 months. I currently weigh 52kg. What should I do to prevent further weight loss?
Hi Takashi, I'm sorry to hear about your weight loss. Amyloidosis often leads to weight loss due to the buildup of abnormal proteins in organs and tissues. However, if you have amyloid deposits in… read more
Diet On AL
For those diagnosed with AL amyloidosis, maintaining a healthy diet is crucial. Here are some key points:
- Mediterranean Diet: Emphasizes whole grains, vegetables, beans, healthy oils, seafood, and… read more
Has Anyone Completely Come Off Their Bp Meds For Postural Hypotension?
And if you have, have you been able to drive again?
The context provided does not include specific information about individuals completely coming off their blood pressure medications for postural hypotension. It's important to consult with a… read more
Has Anyone Here Been Referred To Palliative Care? My Hubby’s Pain Is Out Of Control, The Hematologist Referred Him Today.
Palliative Care has been wonderful, they manage all his pain meds. The team is so caring, empathic and I couldn’t imagine managing this path without them.
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