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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Here Been Referred To Palliative Care? My Hubby’s Pain Is Out Of Control, The Hematologist Referred Him Today.

A MyAmyloidosisTeam Member asked a question 💭
Bay City, MI
January 8
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A MyAmyloidosisTeam Member

Getting referred to palliative care scared me (for my partner) but, the team was so wonderful and they brought my partners out of control nausea under control in just a few hours. We were so grateful. My partner was able then to focus on other issues and, have better visits. I would recommend it.

April 24
A MyAmyloidosisTeam Member

I was referred to a Palliative Care consultation despite being in the early stages of cardiac Amyloidosis. It was a very positive experience. I was deeply impressed with how well the doctor and social worker understood my end of life wishes. I am glad that I have an early relationship with these health care practitioners.

January 8
A MyAmyloidosisTeam Member

Palliative Care has been wonderful, they manage all his pain meds. The team is so caring, empathic and I couldn’t imagine managing this path without them.

April 25
A MyAmyloidosisTeam Member

Thank you for your response, it helps a lot. I was a hospice volunteer years ago & palliative care was the step before. Everything has changed now, I am so happy that is covers medical, mental and spiritual concerns. We have deep faith, but the unknown is pretty scary! God bless you!

January 9
A MyAmyloidosisTeam Member

Being unfamiliar with 'palliative care', I Googled it and read what May clinic has to say. From that reading, looks like a good option.

January 8

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