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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Completely Come Off Their Bp Meds For Postural Hypotension?

A MyAmyloidosisTeam Member asked a question 💭
Nassau county, NY

And if you have, have you been able to drive again?

January 10
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A MyAmyloidosisTeam Member

I had hypotension but not posural hypotension. So am not really answering your question. Thanks to 45mg/day midodrine for about 6 months, my bp is back in normal range. I do give myself a second or two after standing before stepping out, though.
Per my yesterday appointment with my heart doctor, I am free to decrease my Midodrine provided I keep my BP in the 96-115 zone. So I have dropped it from 45m/day to 35mg/day.
As of July 1, 2024, I am now down to 20 mg/day. As for driving, once I got off of hydrocodine I am driving again.

January 10 (edited)
A MyAmyloidosisTeam Member

I did.

January 10
A MyAmyloidosisTeam Member

The context provided does not include specific information about individuals completely coming off their blood pressure medications for postural hypotension. It's important to consult with a healthcare provider for personalized medical advice regarding medication management.

 This AI-generated response comes from MyAmyloidosisTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

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July 8
A MyAmyloidosisTeam Member

You guys give me hope! When I was sent to the hospital in March of 22 with a heart rate of 35 and had a pacemaker put in. They put me on midodrine to boost my bp. I was on 60 mg a day as of now it’s 15. I know I’m a work in progress and have to have patience but that’s not my strong suit!

January 10
A MyAmyloidosisTeam Member

Do you feel comfortable? I worry that my response time might be compromised. I’m still on 15 mg of midodrine so I have time to make decisions.

January 10

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