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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Are You Frustrated With Finding Effective Treatments For Amyloidosis?

By A MyAmyloidosisTeam Member 14 answers

What Lessons From Your Amyloidosis Experience Are You Applying In 2024?

By A MyAmyloidosisTeam Member 33 answers

Do You Follow A Specific Diet To Help With Amyloidosis?

By A MyAmyloidosisTeam Member 34 answers

How Does The Cold Affect Your Amyloidosis?

By A MyAmyloidosisTeam Member 36 answers
816 questions

How Can I Write The Type Of Amyloidosis In My Registration?

A MyAmyloidosisTeam Member asked a question 💭
Japan

How can I write the type of amyloidosis in my registration?

A MyAmyloidosisTeam Member

Hi, KimDugan
I wrote my type of amyloidosis in my registration. Thank you for answering my question.

January 10

Does The Barostim Device Help Wild Type Amyloidosis?

A MyAmyloidosisTeam Member asked a question 💭
Anderson, SC
A MyAmyloidosisTeam Member

If you are asking if that device has any significant permanent positive effect on wild-type amyloidosis, the answer is no.

Amyloid fibrils are proteotoxic. Proteotoxicity refers to the adverse… read more

December 30, 2023 (edited)

I Have The Wild Type Attr And Have Been On Vyndamax For 10 Months And I Have Lost My Sense Of Taste, Has Anyone Else Have This Problem.

A MyAmyloidosisTeam Member asked a question 💭
Marshall, MN
A MyAmyloidosisTeam Member

Hi, I have been on Vyndamax for almost 5 years. I have never lost my sense of taste. Just thought I’d add that.

April 27

What Is The Life Expectancy For Attr Amyloidosis?

A MyAmyloidosisTeam Member asked a question 💭
Sagamore Beach, MA
A MyAmyloidosisTeam Member

Theresa nailed it again! Well said.

December 29, 2023

Are There Any Amyloidosis Orthopedic (joint) Doctors In The Boston Area, Particularly With The MGH System?

A MyAmyloidosisTeam Member asked a question 💭
Boston, MA
A MyAmyloidosisTeam Member

I would imagine. MGH is one of the leading Clinics in the US.

January 28

Can Attrwt Be Localized

A MyAmyloidosisTeam Member asked a question 💭
Detroit, MI

Does Anyone Have Tounge Rippling And Tounge Inlargment?

A MyAmyloidosisTeam Member asked a question 💭
Wilkes Barre, PA
A MyAmyloidosisTeam Member

Scalloped edges. It did get better from my initial diagnosis

December 20, 2023

Has Anyones Heart Gotten Better With Chemo? My Last Echo Was A Tiny Better Than The Last One. Is It Possible For The Heart To Repair Itself?

A MyAmyloidosisTeam Member asked a question 💭
Nassau county, NY
A MyAmyloidosisTeam Member

I’m here for the long haul as well! I’m not letting this beat me. I have too much to live for. I’m glad to hear that your BNP got better. That’s what I’m hoping for. Even though the cardiologist says… read more

January 8

What Amyloidosis Symptoms Keep You Up At Night?

A MyAmyloidosisTeam Member asked a question 💭
San Francisco, CA
A MyAmyloidosisTeam Member

Bidy pains plus amyloidosis in bladder combine to get me up at keast three times between going to bed at 10 and getting upbfor good at 4 when my dog insists that I get up for good
Thank God for my… read more

March 31

Why Are Some Of The Articles Herein Claiming To Be The Latest News, Yet Many Articles Are Written In (Phone Number Can Only Be Seen By MyAmyloidosisTeam Users)????

A MyAmyloidosisTeam Member asked a question 💭
Orange, CA
A MyAmyloidosisTeam Member

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December 25, 2023
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