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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyAmyloidosisTeam Member 16 answers

Are You Frustrated With Finding Effective Treatments For Amyloidosis?

By A MyAmyloidosisTeam Member 14 answers

What Are Your Top Tips For Dealing With Amyloidosis In The Heat?

By A MyAmyloidosisTeam Member 10 answers

What’s Your Favorite Olympic Sport To Watch?

By A MyAmyloidosisTeam Member 22 answers
806 questions

I’m Looking For An Insurance Carrier That Will Approve Vyndamax , UnderMedicare Part D. Any Help Would Be Greatly Appreciated.

A MyAmyloidosisTeam Member asked a question 💭
Milwaukee, WI

I have ATTR-wild type and doctor prescribed Vyndamax but I currently don’t have insurance and can’t afford the premium, so waiting for part D in January.

A MyAmyloidosisTeam Member

To find an insurance carrier that will approve Vyndamax under Medicare Part D, consider the following steps:

1. Check Medicare.gov: Use the Medicare Plan Finder tool to compare Part D plans and see… read more

November 13

When One Expects Amelioration In Condition After Starting Tafamidis? I Am Feeling Myself More Tired Lately.

A MyAmyloidosisTeam Member asked a question 💭
Europe Malta
A MyAmyloidosisTeam Member

My partner also had a lot more fatigue after Tafamidis and Patisiran. We don't know if it was from the treatment or the disease itself. He had more energy prior to the treatment.

3 days ago

Prior To Diagnosis Of Wild Type Approximately Two Years Ago, I Had Pulled My Biceps Approximately 11 Years Ago.

A MyAmyloidosisTeam Member asked a question 💭
Duncan, BC Canada

What treatments, exercises, Physio could I use to help alleviate the pain in my biceps??
Thanks very much,
Ian

A MyAmyloidosisTeam Member

Hi Ian, As for my bicepts I did nothing and just waited for the pain to go away. It did but If I remember correctly it took a year or more. The worst problem was that I also did a rotator cuff… read more

November 11

I Have A Third Week Chemotherapy Treatments Tomorrow.When Will I See Any Improvement Iñ Conditions

A MyAmyloidosisTeam Member asked a question 💭
A MyAmyloidosisTeam Member

Chemotherapy can be effective in treating amyloidosis, but the timeline for seeing improvements can vary based on individual factors and the specific treatment regimen. Some people may start to notice… read more

November 10

How To Check Stage Of Amyloid

A MyAmyloidosisTeam Member asked a question 💭
Indian Hills, CO
A MyAmyloidosisTeam Member

To check the stage of amyloidosis, doctors use various tests and biomarkers. Here are the key steps:

1. Blood and Urine Tests
- Measure biomarkers like NT-proBNP and cardiac troponin T for heart… read more

November 10

How Many Cycle Of Chemotherapy Given To Al Amyloid?

A MyAmyloidosisTeam Member asked a question 💭
Indian Hills, CO
A MyAmyloidosisTeam Member

The number of chemotherapy cycles for AL amyloidosis can vary based on individual treatment plans. Here are some key points from my knowledge base:

- Chemotherapy Medications: Common drugs include… read more

November 10

Is Al Amyloid (affected To Kidney) Curable?

A MyAmyloidosisTeam Member asked a question 💭
Indian Hills, CO
A MyAmyloidosisTeam Member

AL amyloidosis, which can affect the kidneys, currently has no cure. However, treatments can help manage the condition and improve quality of life. Here are some key points:

- Treatment Goals: Reduce… read more

November 10

Are There Any Studies To Join For Amyloidosis AL And Frontal Lobe Dementia Connection?

A MyAmyloidosisTeam Member asked a question 💭
Jermyn, PA

Anyone Having Luck With Neuropathy Treatment?

A MyAmyloidosisTeam Member asked a question 💭
Cleveland, OH
A MyAmyloidosisTeam Member

Are you looking for effective treatments for neuropathy caused by amyloidosis? Here are some options mentioned in my knowledge base:

- Diflunisal and Tafamidis: These medications slow the buildup of… read more

November 9

Do We Have Any Other Drug Like Vyndamax I Have The ATTR Wild Version

A MyAmyloidosisTeam Member asked a question 💭
Mount Airy, MD
A MyAmyloidosisTeam Member

Yes ,Janet2 from Enhland ..i have cardiac AMYLOIDOSIS ATTR wild type was told this in Jan of 2024. And I have back spine lumbar hip issues and gastro issues amd carpul tunnel.

November 12
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