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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What’s One Thing About Amyloidosis That People Rarely Discuss But Should?

By A MyAmyloidosisTeam Member 25 answers

How Do Beverages With Caffeine Affect Your Amyloidosis?

By A MyAmyloidosisTeam Member 32 answers

Does Anyone With Amyloidosis Have A Liquid Intake Restriction? I Think I Need It I Gather Often Liquid In My Chest And Need Fluid Restrict

By A MyAmyloidosisTeam Member 17 answers

What's A Common Misconception About Amyloidosis?

By A MyAmyloidosisTeam Member 24 answers
869 questions

Delete Account

A MyAmyloidosisTeam Member asked a question 💭
A MyAmyloidosisTeam Member

To delete your account on MyHealthTeam, follow these steps:

1. Select the menu icon in the upper left corner
2. Go to 'Settings' and then 'Account Settings.'
3. Scroll to the bottom and select… read more

3 days ago

Can U Describe Onset Of Amyloidosis In The Kidneys?

A MyAmyloidosisTeam Member asked a question 💭
Ottawa, ON
A MyAmyloidosisTeam Member

The onset of amyloidosis in the kidneys often begins with symptoms like swelling in the feet, ankles, or abdomen, which is a sign of kidney damage. Other early signs include decreased urine output… read more

December 9

Is Anyone Taking Acoramidis (Attruby) Which Was Just Approved By The FDA And Is A Competitor To Vyndamax (tafamidis)

A MyAmyloidosisTeam Member asked a question 💭
Tampa, FL
A MyAmyloidosisTeam Member

good question . I was wondering if anyone had talked to their doctor about switching or if there was a benefit switching if vyndamax is working?

5 days ago

Do Patients With Attr Wild Type Ever Get Rid Of Afib

A MyAmyloidosisTeam Member asked a question 💭
Oklahoma City, OK
A MyAmyloidosisTeam Member

Patients with ATTR wild-type amyloidosis often experience atrial fibrillation (AFib) due to heart involvement. While treatments like tafamidis can slow disease progression and improve symptoms, they… read more

December 8

Has Anyone Used The New Second FDA Approved Drug That Can Be Used In Combination With Vydamax The First FDA Approved Drug?

A MyAmyloidosisTeam Member asked a question 💭
Fresno, CA
A MyAmyloidosisTeam Member

Sigh…

December 13

How Difficult Is It To Breathe As The Disease Progresses?

A MyAmyloidosisTeam Member asked a question 💭
Florida, NY

Amyloidosis. ATTR WT

A MyAmyloidosisTeam Member

and get a chest X-ray to see if you have fluid in your lungs as well as other places, usually a sign of some heart failure, Get a echocardiogram as well see your ejection fraction as well.

December 7

Under What Circumstances Would A Patient With Wild Type Attr Cm Switch From Vyndmax To The New FDA Approved Stabilizer?

A MyAmyloidosisTeam Member asked a question 💭
San Francisco, CA

How Do I Get My Prescription Filled Quickly

A MyAmyloidosisTeam Member asked a question 💭
New York, NY
A MyAmyloidosisTeam Member

To get your prescription filled quickly, consider these tips from my knowledge base:

1. Check if your pharmacy has the medication in stock before visiting
2. Use online or app-based prescription… read more

December 7

Could You Send Me Some Signs Of Amyloidosis

A MyAmyloidosisTeam Member asked a question 💭
Leitchfield, KY
A MyAmyloidosisTeam Member

Here are some signs of amyloidosis:

1. General Symptoms: Fatigue, weight loss, anemia, and muscle weakness
2. Kidney Symptoms: Swelling in legs, foamy urine, and decreased urine output.
3. Heart… read more

December 7

Could You Give Me Some Digs Of Amyloidosis

A MyAmyloidosisTeam Member asked a question 💭
Leitchfield, KY
A MyAmyloidosisTeam Member

Amyloidosis is a group of rare diseases caused by the buildup of abnormal proteins, called amyloids, in organs and tissues. Here are some key points:

1. Types: AL (light-chain), AA (secondary)… read more

December 7
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