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Does Anyone Have Arthritic Joints That Have Gotten Worse Since Amyloidosis? Specifically Thumbs?
Amyloidosis can cause joint pain and may sometimes mimic rheumatic conditions like rheumatoid arthritis, leading to misdiagnosis. Amyloid proteins can build up in joints, causing issues such as carpal… read more
Does Vyndamax Affct The Kidneys Adversely?
It depends how is ones heart health due to deposition of amyloid on the left ventricle or causing heart failure & myopathy
My cardiologist in India has prescribed Vyndamax ,very low doses with beta… read more
Will A Fat Pad Biopsy Clearly Determine Whether I Have Systemic Amyloidosis?
A fat pad biopsy can help determine whether you have systemic amyloidosis. During the biopsy, a small tissue sample is taken from your abdominal fat and sent to a laboratory. There, it is stained with… read more
2 Lead Pacemaker Vs 3 Lead
My husband's electrocardiologist recommended changing his 2 lead pacemaker to a BiV 3 lead pacemaker. Said it might help with his ejection fraction of 48 and his shortness of breath. Has anyone had any experience with this?
Do you already have a pacemaker?
Can One Have More Than One Your Of Amyloidosis?
I have ATTRmc. I'm not yet certain if it is hereditary or wild type.
My tests for AL show that it is mildly possible.
I have ATTRwt
Sarcoidosis & Amyloidosis
Is there any other members who have been diagnosed with both Sarcoidosis & Amyloidosis? My husband has had chronic sarcoidosis for over a decade and recently been diagnosed with Amyloidosis, we don't know the type of Amyloidosis yet (more tests pending).
His chronic sarcoidosis is pretty rare but Amyloidosis is even rarer here in Norway (only 50 in entire country) so the combination of the two makes him a bit of an outlier. Wondering if anyone else has any experience with this?
Tuberculosis is an infectious disease and can be cured. Sarcoidosis is a non-infectious immune-mediated disease and it cannot be cured, its an auto-immune disease, for some it goes away on its own but… read more
Moderation
Who moderates and what criteria do they use to censor postings?
The community guidelines for MyHealthTeam include several key points to ensure a safe and supportive environment:
- Respect and Acceptance: No judgmental tone, respect differences, and no hate… read more
What Is The Proper Dosage Of Diflunisal To Help Prevent Amyloid Buildup In ATTRwt?
I take 1/2 of 500MG Diflunisal each morning and evening. I have been taking this dosage for almost 2 years and no buildup. But, I have hATTR (hereditary) Amy. Hope that helps.
Hi, Info On A Free Light Chain Test
Had a Free light chain test and the results were Kappa 22.83 normal range is 3.3 to 19.4........Lambda was 11.07 normal is 5.71 to26.3......Kappa/Lambda ratio is 2.06 normal is 0.26 to 1.65 Dr says it's slightly elevated and not to worry any Dr post here that can give any advise or anyone else for that matter I thought anything out of range was a sign for concern TIA
The serum free light chain (SFLC) assay tests for the presence of immunoglobulins in the blood. Immunoglobulin light chains are parts of these proteins that usually bind to another part, called heavy… read more
Does Anyone Have Postural Hypotension?
I know I need to exercise but I can’t go out by myself. There’s always the potential to pass out. What exercises can you do by yourself at home? It’s very frustrating. I feel so much better when I’m out and moving around. There’s only so many times you can clean your house! 🙄
I need to restart my exercise routine
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