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I Live In Central Florida. Getting Ready To Go On Medicare Part D. Is Anyone On Vyndamax Under D?Under Which Insurance?
And also look for Vyndaquel, which is the same combo of drugs as Vindamax, but 4 pills once a day instead of 1 pill once per day. What matters is whether either drug is on the Part D plan Formulary… read more
I've Been Subscribed Jardiance Along With My Vyndaquel. Is Anyone Else Using This Drug, And Have You Seen Results?
I have been on Vyndamax and Jardiance for about a year - had an Ecco in April results show an improvement in flow rate. Seems to be slowing the progression of the disease.
Can Vyndamax Harm Me If I've Been Taking It For A Year And Don't Have Amyloidosis? 1 Yr Ago Test Said "probably". Now No Sign???
How did you get on tafafidis without amyloidosis?
What Experience Have You Had With Improvement Or Continued Decline In Your Ejection Fraction While Taking Vyndamax?
My EF has been declining and I am wondering what chance there is of improvement. I have wild type.
Impressive!
Is Anyone Taking Vyndamax61 For Attrcm? If So Are You Satisfied ? Richard 5
Same here my friend. 3 years too.
For Those Of You Who Have ATTRwt, I Am Curious What Additional Medications You Take To Treat Your Heart, Besides Amy Medication(s).
Jardiance 10mg. I also take 200 mg of nattokinase which I get from amazon and swanson.
What Has Been Your Experience With Vyndamax?
So far I’ve had no issues with Vyndamax it’s some of the other medications I’ve taken that had given me bad side affects.
Have You Found Vyndamax To Help Or Shortness Of Breath Or Relieve It Altogether? Has Helped Me But I Still Get Winded Walking.
There is no hard-fast rule as to when neuropathy will be experienced by an Amyloidosis patient or in what form. There is great variability among people as to such factors as preexisting spinal column… read more
Costs Associated With Amyloidosis Treatments
What are the most expensive meds/treatments for Amyloidosis?
Excellent. Glad that you were able to get some assistance.
Is There Anyone Else Out There With Cardiac Amyloidosis ATTR Wild With Heart Failure?
Hope and pray for a cure. I think it may be just 4 years away if depleter drugs are approved by health authorities.
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