How did you get on tafafidis without amyloidosis?

this is very intriguing. Have you stopped taking Vydamax? if you tested positive for the gene, doesn’t that mean you have amyloidosis? what will follow up be and what is he calling “minute” enough that your children dont need testing?

I had symptoms of extreme fatigue!!! Carpal Tunnel both wrists, sensetive to cold and heat, kept losing weight. Then they took a test to see if I had the gene. I had the gene (3). So they determined I should take the meds for the heart. Doctor said, off hand, "you don't even have to tell your family to get tested, it's so minute". I don't know what's going on. Have apt. with doctor early November. Not going to rock the boat just yet! I have no idea if it's elsewere. In general, I feel lousy!

can you please elaborate on this? What type did they say that you had? My test also said likely but not certain and I’ve been taking VYndaMax for a year as well.