Connect with others who understand.

Sign up Log in
Resources
About MyAmyloidosisTeam
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is Anyone Taking Vyndamax61 For Attrcm? If So Are You Satisfied ? Richard 5

A MyAmyloidosisTeam Member asked a question 💭
New York, NY
May 20, 2023
•
View reactions
A MyAmyloidosisTeam Member

I have been taking vyndamax61 for 3 years and I think it is helping. Heart is weak but things seem stable otherwise
Just hang in there
Richard 5

March 24
A MyAmyloidosisTeam Member

Hi Richard. I have been on Vyndamax for 5 years, free from Pfizer. I am 88, still hanging in there. Al

November 1, 2023
A MyAmyloidosisTeam Member

I have a similar history with using vyndamax61
Heart evaluations are stable for over 2 years
Still hoping for a new drug to remove the amyloid deposit but may be gone before that happens

August 13, 2023
A MyAmyloidosisTeam Member

Richard5
3 years now. I'm happy with both the drug and the manufacturer Pfizer. Both seem to have come through for me. Its been over 2 years now and though I do not have a heart specialist in Amyloidosis things have not blown up yet. My heart has had ventricular ectopy problems but they seem to be going away leaving AFIB. I'm willing to accept that without proof. You can only look at your history and see if you've progressed or are still alive. I literally don't know where I would be without it. Roy2

August 13, 2023
A MyAmyloidosisTeam Member

Same here my friend. 3 years too.

March 24

Related content

View All

Where Is Tafamadis Becoming Available In England

A MyAmyloidosisTeam Member asked a question 💭
England, AR

Is Septal Myectomy Appropriate To Treat Left Ventricle Stiffening Caused By Cardiac Amyloidosis(wild Type).?

A MyAmyloidosisTeam Member asked a question 💭
mexico,mexico

Can Stiffened Left Ventricle Wall Caused By Amaloids Be Fixed By A Septal Myectomy?

A MyAmyloidosisTeam Member asked a question 💭
mexico,mexico
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in