Velcade What Is The Cost/month
After 24 CyborD +D Treatments I’m Still Not In Full Remission, Or CHR. I Have AL Amyloidosis. What Is Next? How Can I Get Into CHR?
Hi Jen
Meant to get back to you yesterday. I apologize for the delay.
I did 3 Cycles of CyBorD.
4 cycles of Dara, Velcade and Dex
8 cycles Carfilzomib, Revelimid and Dex
Has Anyone With AL Amyloidosis Had Stem Cell Transplant? If So, Long Did You Stay In Hospital?
I was in the hospital for 20 days. I’ve only been out for a month. The recovery so far has been really slow. I think it’s been worth it because I am in total remission. But I still can’t eat much and… read more
Has Anyone Had A Nurse Inject Velcade And Dara At A 90 Degree Angle Without First Pinching The Skin?
Nurse today injected straight into my abdomen on both sides, no pinching the fat first. My understanding is the injections are supposed to be subcutaneous and not go into the muscle directly (where the meds are absorbed faster). This is my sixth chemo, and by far the most painful. Within an hour I was nauseated, achey, chilled, and sick to my stomach. Just wondering if these new immediate side effects could be related to the way the meds were injected - specifically into the muscle. Anyone else… read more
Thanks everyone for your responses. Chemo was Friday, and the severe pain in my abdomen continues. I will mention this to my oncologist and be sure to ask future nurses to pinch the skin and go slowly… read more
How Are You (all) Being Treated For Perifial Amyloid?
Peripheral neuropathy in AL amyloidosis can be managed through various treatments. Here are some options:
- Chemotherapy: Drugs like Cytoxan (cyclophosphamide) and Evomela (melphalan) are used
-… read more
Is Anybody With Al Amyloidosis On Dyalis Aswell. I Have Been On Dyalis And Daratumab Since August Last Year.
😍😃
Thanks Katy .I was unlucky I got Covid a couple of weeks after my Al Amyloidosis diagnosis and that put me on Dyalis and Daratumab at the same time.Thanks for your prayers.Best Regards Eugene.
Anyone Else With AL Amyloidosis In Their Digestive System?.
I am experiencing daily bouts of nausea, vomiting, diarrhea and extreme drops in blood pressure. For the past 2 months now. I am currently in CHR and have been done with chemo for one month. Didn’t have any of these issues while on treatments. Any thoughts or similar issues out there? I’m just wondering if it’s the Amyloidosis or a result of nerve damage from the chemo? I’ve had bacterial and parasite tests done but no evidence of either. Also had a recent echocardiogram which was normal. No-one… read more
How about a cardiac MRI?
Does Anyone Else Have Trouble Falling? I Have Fallen Twice In The Past Two Weeks.
Darzalex Fastoro.
Has anyone with Amyloidosis received more than 24 injections of Darazalex Fastpro?
I thought I read somewhere that there was a limit of 24.
Thanks for any and all replies.
Jim
What Is Maintenance Chemo?
I’m prescribed Darzalex 1x/month now