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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone With AL Amyloidosis Had Stem Cell Transplant? If So, Long Did You Stay In Hospital?

A MyAmyloidosisTeam Member asked a question 💭
Killeen, TX
September 9
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A MyAmyloidosisTeam Member

Yes, people with AL amyloidosis have undergone stem cell transplants. After the procedure, patients often need to stay in the hospital for a few weeks to recover. This recovery period is necessary due to the high-dose chemotherapy and the reintroduction of stem cells, which can come with risks and side effects.

 This AI-generated response comes from MyAmyloidosisTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

Treatment Options for AL Amyloidosis | MyAmyloidosisTeam
Life Expectancy With Amyloidosis | MyAmyloidosisTeam
September 9
A MyAmyloidosisTeam Member

I was in the hospital for 20 days. I’ve only been out for a month. The recovery so far has been really slow. I think it’s been worth it because I am in total remission. But I still can’t eat much and have almost 0 energy. It’s improving, but like I said, really slowly.

September 27
A MyAmyloidosisTeam Member

I was told 21 days. It’s a very personal decision. I decided against it. I’m in complete response. Things are stable. I’m on maintenance treatment. Velcade every other week and darzalex once a month. Very very grateful.

September 9
A MyAmyloidosisTeam Member

Thank you, I needed to hear that. I'm still waiting on the consult and I'm hoping I can get it done after the holidays. The past 2 follow ups my oncologist hasn't been happy, so she upped my chemo, that's why I'm looking into the stem cell transplant. 😊

September 9
A MyAmyloidosisTeam Member

Hi Tracy,
I had a stem cell transplant three and a half years ago. I was in the hospital for about two weeks. This was during COVID so I stayed isolated at home for 100 days. It was well worth it. My light chains have been normal ever since. I get Velcade shots every 2 weeks for maintenance. Most days I feel fine. My heart and kidney doctors say they'll see me in a year. It's a great treatment. Connie

September 9

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