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Darzalex Fastoro.
Has anyone with Amyloidosis received more than 24 injections of Darazalex Fastpro?
I thought I read somewhere that there was a limit of 24.
Thanks for any and all replies.
Jim
Does Anyone Have Dizziness, Fatigue And Lack Of Energy That Take Darzalex?
I Have Primary Amyloidosis AL And A Very Swollen Tongue. Has Anyone Had This Problem And Gotten Relief? What Helped?
Somewhat. The taste isn’t as bad as it was but it changes from time to time.
Is Anyone Dealing With AL Amyloidosis For The GI? Can Anyone Share If Their Therapy Stopped The Production Of Proteins?
In people with AL amyloidosis, the body makes abnormal proteins faster than they can be removed. Treatments aim to stop the production of new amyloid proteins, which may give the body more time to… read more
How Are You (all) Being Treated For Perifial Amyloid?
Peripheral neuropathy in AL amyloidosis can be managed through various treatments. Here are some options:
- Chemotherapy: Drugs like Cytoxan (cyclophosphamide) and Evomela (melphalan) are used
-… read more
Folks, How Are Your Side Effects After The Chemo? I Got Severe Diarrhea, And Nothing Can Stop It.
Yes. With some people it works but not with me
Lactose intolerance and seefood intolerance I had from quite long ttime. But nuts and seasoning started to bother me after my very first chemo. Doctors… read more
How Does AL Amyloidosis Affect Your Muscles?
I’m experiencing lower back pain-and haven’t strained my back in any way. Just wondering if it could be the Amy?
Rob, I am also on Hydrocodone and it does help. My pain levels also are in the 8-9 levels. Not at all fun :-( I am targeting Kyphoplasy as a possible solution--hopefully by end of April (today is… read more
What Is Maintenance Chemo?
I’m prescribed Darzalex 1x/month now
Has Anyone With AL Amyloidosis Had Stem Cell Transplant? If So, Long Did You Stay In Hospital?
I was in the hospital for 20 days. I’ve only been out for a month. The recovery so far has been really slow. I think it’s been worth it because I am in total remission. But I still can’t eat much and… read more
Started 6th Wk Of Chemo. Suddenly Feeling Good. More Energy, Head Not Fuzzy, More Stamina. Any Answers?
So true. I really overdid it beginning of spring on the deck. I paid for days. WIll not do that again.
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