I Have Primary Amyloidosis AL And A Very Swollen Tongue. Has Anyone Had This Problem And Gotten Relief? What Helped?
Somewhat. The taste isn’t as bad as it was but it changes from time to time.
I had the CyborD for four months but "relapsed" as my doctor determined. Currently having tests done to figure out best next steps. I see my doctor next week to discuss. Has your tongue swelling gotten any better?
I finished 16 weeks of chemo a month ago and the swelling has gotten worse, My neck is swollen and my taste buds are also struggling. Difficult to chew, speak and swallow. Steroids have helped but I don't want to be on them too long. Looking for a better solution.
Yes I’ve had this. Treatment does help but still struggling with the taste of food. It can be very frustrating. Are you in treatment now?
For Those Who Have Wild Type And Took The Covid Vaccines. How Many Were Diagnosed After Getting The Jabs. Pfizer 1 & 2 And Follow Up?
Info On Pfizer's Patient Support
Started 6th Wk Of Chemo. Suddenly Feeling Good. More Energy, Head Not Fuzzy, More Stamina. Any Answers?