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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Folks, How Are Your Side Effects After The Chemo? I Got Severe Diarrhea, And Nothing Can Stop It.

A MyAmyloidosisTeam Member asked a question πŸ’­
Edmonton, AB
May 1
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A MyAmyloidosisTeam Member

My hubby had severe diarrhea during most of his chemo. Then he had severe pan & is on opioids, so constipation is the problem now. Never a dull moment!
I called Amy a crappy disease, so difficult to go anywhere. πŸ™ƒ. Hang in there, try Imodium for relief.
Praying for youπŸ™πŸ»πŸ™πŸ»

May 1
A MyAmyloidosisTeam Member

πŸ™πŸΎπŸ™πŸ½πŸ™πŸΎπŸ™πŸ½

May 1
A MyAmyloidosisTeam Member

What about the "Brat" diet during the worst.I used it with my Girls growing up. Bananas,rice,applesauce and toast. No butter,no jelly,no sugar added.Plain.It worked !

May 3
A MyAmyloidosisTeam Member

Low fiber diet, lomotil and Imodium works for me. It was very bad at the beginning of this journey but it has gotten better. Also try drinking whatever liquid you drink 30 minutes before your meal or 60 minutes after.

May 1
A MyAmyloidosisTeam Member

I have 2 more Darzalex shots left in my 2 year treatment course. One in May and one in June. Yes, The severe diarrhea is a constant battle, as is the occasional bout of vomiting and nausea. I now take an Imodium in the morning, one in the afternoon and one at bedtime. It works great for a few days then kaboom!! Off we go again. Then I try to stabilize it all over again. My oncologist said that the Darzalex takes about 5 months to completely leave my system. Then I should start being more β€œnormal” and feeling better. Fingers crossed 🀞 as that means 7 more months of this. Wish I had better news, and yes, it does control our lives, but at least I am in β€œcomplete remission β€œ and am hoping that will last for a long, long time. I’m winning the battle!

May 1

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