Was Age Of Onset Pretty Consistent In Hattr (familial) Type ?
I have 3 siblings and they all have hTTR . My brother had a heart transplant, My other brothers are on Vyndemax. I am on Onpattro. This disease is not a good one. Make sure you have a doctor who can help you💜🩷💜🩷
I think when my symptoms began I had cardiomyoathy ischemic probably around 60. Now 78 almost 79. Had pacemaker and defib implanted. Have CFH. Got vyndamax Friday 3/7/24.
All my siblings and I were diagnosed with hTTR amyloid in our 60s. But both my brother and I were misdiagnosed with high blood pressure and Afib for about 10 years.
Thank you,and yours as well.
Wish you and your family well Roxanna
Hello….Those Of You With Hattr. Did It Tend To Run In Your Families? And Was The Age Of Onset Younger Than 75?
Does A Negative Attr Gene Test Mean I Have Wild Type?
Hi I Was Diagnosed With Hereditary Amyloidosis Attr T60A Variant In June 2023 Receiving Vutrisiran Since October 2023 Also Have Neuropathy