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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Was Age Of Onset Pretty Consistent In Hattr (familial) Type ?

A MyAmyloidosisTeam Member asked a question 💭
Sacramento, CA
February 19
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A MyAmyloidosisTeam Member

I have 3 siblings and they all have hTTR . My brother had a heart transplant, My other brothers are on Vyndemax. I am on Onpattro. This disease is not a good one. Make sure you have a doctor who can help you💜🩷💜🩷

March 16
A MyAmyloidosisTeam Member

I think when my symptoms began I had cardiomyoathy ischemic probably around 60. Now 78 almost 79. Had pacemaker and defib implanted. Have CFH. Got vyndamax Friday 3/7/24.

March 8
A MyAmyloidosisTeam Member

All my siblings and I were diagnosed with hTTR amyloid in our 60s. But both my brother and I were misdiagnosed with high blood pressure and Afib for about 10 years.

March 4
A MyAmyloidosisTeam Member

Thank you,and yours as well.

February 22
A MyAmyloidosisTeam Member

Wish you and your family well Roxanna

February 22

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