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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hi I Was Diagnosed With Hereditary Amyloidosis Attr T60A Variant In June 2023 Receiving Vutrisiran Since October 2023 Also Have Neuropathy

A MyAmyloidosisTeam Member asked a question 💭
Milton Keynes, UK
July 6
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A MyAmyloidosisTeam Member

Thanks paddy for the information

October 29
A MyAmyloidosisTeam Member

Hi Mark, I also have hATTR Amyloidosis type T60a also called “Donegal Amy”. This type is very common to a small coastal area of Donegal from Rosses, Gweedore and Cloughaneely areas which has also travelled with the descendants and diaspora to UK, USA, Australia. My personal belief, and some medical reports from international Amy experts who visited our areas reckon it also may be connected to the shipwrecked sailors of the Spanish Armada back in 1588. Myself and some other Donegal based patients have formed a patient’s support group on Facebook called Amyloidosis Ireland. Our website has loads of info and can be viewed at Amy.ie
All the best, Paddy Doherty, Gweedore, Co. Donegal

October 28
A MyAmyloidosisTeam Member

What is my prognosis

July 6
A MyAmyloidosisTeam Member

Try, I know it’s hard, not to focus on your prognosis. Take it one day at a time.

July 7
A MyAmyloidosisTeam Member

I'm sorry to hear about your diagnosis. Here are some key points about hereditary ATTR amyloidosis and your treatment:

- T60A Variant: This mutation is often seen in people of Irish descent and is associated with a later onset of symptoms, typically between ages 45 and 78, most commonly after age 60.

- Vutrisiran Show Full Answer

I'm sorry to hear about your diagnosis. Here are some key points about hereditary ATTR amyloidosis and your treatment:

- T60A Variant: This mutation is often seen in people of Irish descent and is associated with a later onset of symptoms, typically between ages 45 and 78, most commonly after age 60.

- Vutrisiran (Amvuttra): This medication is one of the FDA-approved drugs that blocks the TTR gene from making amyloid protein, specifically for those with nerve problems.

- Neuropathy: This is a common symptom of hATTR amyloidosis, where the misfolded amyloid proteins affect the nerves.

If you have any specific questions or need more information, feel free to ask!

July 6

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