Accidental Post Deletion
I deleted a post that was a reply to Satish Chandra and it seems to have deleted the entire thread. Can someone restore the thread?
Thanks for your guidance, purchased the Book- a great read How to be Sick by Toni Bernhard and also bought the monthly subscription of Uptodate.Com.
However ,still realize that the cure is far from the sight and medical management is complex due to involvement of multiple organs. May guide me should I visit Mayo Rochester for an opinion? It seems nor able to improve upon the dizziness, shortness of breath, numbness in hands, hip and spine pain, bloating ,disintended + inflammation due Lymphadenopathy . There are at times the confusing symptoms between Sarcoidosis & Amyloidosis. Need a good Specialist of Amyloidosis to share my reports. I had consulted Dr. Rodney Falk from Harvard Medical School, who agreed to the treatment regimen. I have requested Mary & Dena if they may help our Amyloidosis Support Group of India as most of us are exhausted or made chemotherapy as the permanent friend.
Please guide me on the.above narratives including your reflection on my article ,link provided below. Please also advice good reads and looking forward to your valuable insights.
Best Regards,
Satish Chandra
Amyloidosis: A deadly disease that poses a big challenge due to its complicated nature
https://organiser.org/2023/08/28/192439/bharat/...
Sorry Mr.Joel,
It might have happened by mistake. I am really obliged and tried to subscribe the Uptodate.Com and also buy the Book,How to be Sick by Tony Berhard.
Pleased to inform that your insights are encouraging.
Shall appreciate your guidance and your conversations with the group members of Amyloidosis Support Group of India ( ASGI).
Warmest regards,
Prof.( Dr) Satish Chandra
I Have Cardiac Attr An I Am On Vydamax. Lost Lots Of Muscle Mass Used To Be College Football Player. Is This A Symptom Any Advice?
Cardiac Hereditary Amyloidosis
Husband Is Newly Diagnosed With AL Cardiac Amyloidosis. Looking For Recommendation Of A Doctor Or Program At An Amyloidois Center.