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Husband Is Newly Diagnosed With AL Cardiac Amyloidosis. Looking For Recommendation Of A Doctor Or Program At An Amyloidois Center.

A MyAmyloidosisTeam Member asked a question πŸ’­

We are in eastern Pennsylvania and he has been in the hospital for 17 days trying to get all the fluid out that has built up in his legs. He is hopefully coming home in a few days. His heart function is not great. Still waiting on test results for official diagnosis. They did a heart biopsy yesterday and results take a few weeks. The cardiologists are fine but the oncologists here have never had a case like this, they only speak to multiple myeloma. I would like my husband to at least get a… read more

October 4
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A MyAmyloidosisTeam Member

In NY I go to northwell. Very happy with my progress. Penn sounds like a good option for you if it’s close by.

October 5
A MyAmyloidosisTeam Member

I'm sorry to hear about your husband's diagnosis. Here are some recommendations for experienced amyloidosis centers and doctors in your area:

Recommendations
1. Philadelphia:
- Penn Medicine: Known for their expertise in cardiac amyloidosis. They have a dedicated amyloidosis program.
- Temple University Hospital: Show Full Answer

I'm sorry to hear about your husband's diagnosis. Here are some recommendations for experienced amyloidosis centers and doctors in your area:

Recommendations:
1. Philadelphia:
- Penn Medicine: Known for their expertise in cardiac amyloidosis. They have a dedicated amyloidosis program.
- Temple University Hospital: Offers specialized care for amyloidosis patients.

2. New York:
- Columbia University Medical Center: They have a comprehensive amyloidosis center with experienced specialists.
- Mount Sinai Hospital: Another excellent option with a dedicated amyloidosis program.

Additional Tips:
- Seek a Referral: Ask your current cardiologists for a referral to one of these centers.
- Join Support Groups: Consider joining MyAmyloidosisTeam to connect with others who can share their experiences and recommendations.

Important Considerations:
- Early Detection and Diagnosis: Early and accurate diagnosis is crucial for effective treatment.
- Experienced Team: Ensure your healthcare team includes cardiologists and oncologists experienced in amyloidosis.

I hope this helps, and I wish your husband a smooth recovery and effective treatment.

October 4

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