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Does Anyone Else Retain Fluid In Their Foreskin ?
I take one Bumetanide 1 mg a day fluid not too bad in feet but mainly in foreskin which is very uncomfortable
Oh Bless you I hope you get it sorted soon, x
Is The Watchman Comparable With A Person Who Has Amayloidose?
Mine says no for any one
What Helps Amyloid In Your Mouth
Amyloidosis can affect the mouth, leading to a condition called macroglossia, where the tongue becomes large, hard, and covered with spots or blisters. This can cause:
- Pain in the tongue
- Problems… read more
Is There A Particular Specialist I Should See Concerning A Positive Or Negative Diagnosis For Amyloidosis?
I have been looking for answere since 1996. I was finally saddled with chronic fatigue syndrome, but to me that is a generic place they assign people for whom they don't have answers. So I figure that 1 - I haven't seen the right specialist or 2 - whatever I have must be very rare and underdiagnosed. I have seen a neuro requesting we revisit MS and he ordered blood labs. I review and research everything and there are a couple that are very unusual. Low igg which normally indicates prone to… read more
Linda hasn’t been on here since last May. Hope she’s ok 😿
HELP! Medicare CIGNA Insurance
I’ve been on Vyndamax 3 years. They refuse to refill Rx. They want me to go on Vyndaquel which is 4 PILLS A DAY.
I’ve got a Board Doctor Director at St. Joseph’s Hospital in Orange, CA.
He said Insurance is bad all about $.
Please give me any suggestions!
What Is The Best Anti-inflamatory Diet For Amyloidosis With IBS?
I have IBS and can't have dairy or gluten, etc. and am wondering if amyloidosis causes food intolerances. Also, what about protecting the kidneys, etc.?
Make sure it’s just IBS. I thought I had IBS and I got a colonoscopy and endoscopy done. I have amyloid in my GI tract.
Slight Remission No Treatment
ratio switches between now normal (1.48) & from slightly elevated (1.71)
kappa elevated (from 24 now 22)
not being treated at this time
any comments about this "natural" minor reversal and any going forward ?
When a disease is in remission, it means the signs and symptoms have disappeared. However, for chronic diseases like amyloidosis, remission often requires ongoing treatment and regular follow-up… read more
Has Anyone Had Localized Build Up On Leg Removed By Surgery/skin Graph?
Do you have confirmed localized amyloidosis and if so, which type is it? Is it cutaneous and on the surface of your skin or is it nodular in appearance, and causing lumps in the tissues? The lumps can… read more
What Percentage Of People Who Take Six Months Of Chemo Treatment For AL Amyloidosis Follow It Up With A Stem Cell Transplant?
I had a stem cell transplant 2 and one half years ago. It's a bit tough but well worth it. My light chains are normal and I feel fine
Is There Any Other Lady From UK Who Has Got Amyloidosis ATTR Wild? Please Get In Touch Xx Janet2
I would like to chat with another lady in the UK who has what I have got, I have Cardiac amyloidosis ATTR wild. Just to see how you are getting along.
Please get in touch. I am Janet2
xxxx
Janet2.I am in the USA and do not know. I hope someone else in the group and advise you.Jeffrey
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