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Is There A Particular Specialist I Should See Concerning A Positive Or Negative Diagnosis For Amyloidosis?
I have been looking for answere since 1996. I was finally saddled with chronic fatigue syndrome, but to me that is a generic place they assign people for whom they don't have answers. So I figure that 1 - I haven't seen the right specialist or 2 - whatever I have must be very rare and underdiagnosed. I have seen a neuro requesting we revisit MS and he ordered blood labs. I review and research everything and there are a couple that are very unusual. Low igg which normally indicates prone to… read more
Contact a cardiologist and be ready for testing such as ekg, echocardiogram and blood work.
Linda hasn’t been on here since last May. Hope she’s ok 😿
If you suspect you have amyloidosis or have received a positive diagnosis, you should see a specialist. Typically, a hematologist-oncologist, like Dr. Todd Gersten mentioned in the knowledge base, would be appropriate. They specialize in blood disorders and cancers, which are relevant to amyloidosis, especially AL Show Full Answer
Linda, these comments are almost a year old. What is happening you since?
I was diagnosed by a hematologist who did a needle biopsy. Then check each of your organs out.
I Am So Frustrated. I Know I Have Amyloidosis In My Lungs, My Heart And Showd Up In My Urine Test. But Not In My Bone Marrow Biopsy. Con't
If No Amyloidosis Is Found In Bone Marrow But In Lung Stem Is It Localized
I Saw An Amyloid Specialist And Exhaustively Went Over My Symptoms. He Was Sure I Have Amyloidosis. Tests Show I Do Not. What Can It Be?
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