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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is There A Particular Specialist I Should See Concerning A Positive Or Negative Diagnosis For Amyloidosis?

A MyAmyloidosisTeam Member asked a question 💭
Olympic Peninsula, WA

I have been looking for answere since 1996. I was finally saddled with chronic fatigue syndrome, but to me that is a generic place they assign people for whom they don't have answers. So I figure that 1 - I haven't seen the right specialist or 2 - whatever I have must be very rare and underdiagnosed. I have seen a neuro requesting we revisit MS and he ordered blood labs. I review and research everything and there are a couple that are very unusual. Low igg which normally indicates prone to… read more

February 6, 2023
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A MyAmyloidosisTeam Member

Contact a cardiologist and be ready for testing such as ekg, echocardiogram and blood work.

February 8, 2023
A MyAmyloidosisTeam Member

Linda hasn’t been on here since last May. Hope she’s ok 😿

July 30
A MyAmyloidosisTeam Member

If you suspect you have amyloidosis or have received a positive diagnosis, you should see a specialist. Typically, a hematologist-oncologist, like Dr. Todd Gersten mentioned in the knowledge base, would be appropriate. They specialize in blood disorders and cancers, which are relevant to amyloidosis, especially AL Show Full Answer

If you suspect you have amyloidosis or have received a positive diagnosis, you should see a specialist. Typically, a hematologist-oncologist, like Dr. Todd Gersten mentioned in the knowledge base, would be appropriate. They specialize in blood disorders and cancers, which are relevant to amyloidosis, especially AL amyloidosis.

July 30
A MyAmyloidosisTeam Member

Linda, these comments are almost a year old. What is happening you since?

January 9
A MyAmyloidosisTeam Member

I was diagnosed by a hematologist who did a needle biopsy. Then check each of your organs out.

January 8

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