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Has Anyone Been Advised To Take Supplements Such As Nattokinase Or Serrapeptase?
These two enzymes are described in literature as being usefull in reducing or dissociating the amyloid fibrils in the tissues. I was just wondering what everyone out there has to say about this.
Typo lol I mean I have been doing research on how to get protein out of the body but I think I heard that too I am gonna look into it
What Are The Chances Of Me Inheriting AL Amyloidosis From My Mother?
My mother was diagnosed with AL Amyloidosis on January 6, 2023 and passed away from it 6 months later, June 24, 2023. I really want to be tested but don't know where to go. PLEASE HELP!
Thanks so much Theresa!
Does Anyone Get Rid Of Edema Permanently W/ This Stuff? If So Share
Looking For An Amyloidosis Specialist.
Can anyone recommend a doctor that specializes in Amyloidosis WT? I tried Jacksonville, Fl but they don’t accept my insurance and said I would have to pay $5000 before being seen.
Make sure your new insurance will cover preexisting conditions before signing up.
Seems Anecdotal Rather Than Evidence Based
It seems that the panel discussion focused on opinion and anecdotal information rather than actual experience or verifiable case studies. Is this correct?
Yeah, I overreacted! I'm guessing that anecdotal analyses are pretty good. Probabliyi like Pareto Optimality - you get 89% of the result for 20% of the effort.
Does Anyone Have Trouble Swallowing And Voice Changes? My Husband’s Voice Get Very Strange And It Is Hard To Understand Him.
My husband has Al Amyloidosis
I haven't had much problem swallowing. Sometimes I have indigestion. But l have noticed for about 2 weeks my voice sounds like it's changing, like a 12 year old boy. Cracking and stuff. I'm a 70… read more
Questions For Cardiologist At First Consult?
-->>> Question at the bottom.
Hi all. I reached out to everyone I could and managed to get my Dad an immediate (informal) consult with a cardiologist on the board of cardiology at the Swedish chain of hospitals. (He also graduated from Tufts, which I think is a bonus since they have a Center of Excellence there.)
We almost-know my Dad has cardiac involvement (he's had a-fib show up).
We have an informal phone call with the cardiologist in just a few days, and the promise of helping access… read more
Thank you so much Joel!!! That is really, really helpful information. I'm adding it to the list of things to ask and to make sure to know and do.
How To Control Water Retetion In Body?
Misfoldof amylo protein is controlled by our brain so can we check for brain system??
I Started Vyndaquel This Week. Has Anyone On This Drug Seen A Remission Of Symptoms?
Yes Mary.
Please Recommend Knowledgeable Amyloidosis Docs Near Phoenix. Thank You. Nancy
Mayo Clinic,
Dr. Julie Rosenthal, cardiologist,
https://www.mayoclinic.org/appointments/find-a-...
Dr. Craig Reeder, hematologist
https://www.mayoclinic.org/biographies/reeder-c...#!
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