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Seems Anecdotal Rather Than Evidence Based

A MyAmyloidosisTeam Member asked a question 💭
Sacramento Area, CA

It seems that the panel discussion focused on opinion and anecdotal information rather than actual experience or verifiable case studies. Is this correct?

October 30, 2023
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A MyAmyloidosisTeam Member

Yeah, I overreacted! I'm guessing that anecdotal analyses are pretty good. Probabliyi like Pareto Optimality - you get 89% of the result for 20% of the effort.

October 31, 2023
A MyAmyloidosisTeam Member

Ain't many studies.
None With sufficient numbers of participants.
Amyloidosis is very low on the priorities lists because numbers of us are not big
enough.

Probably a lot more folks have it but hardcto diagnose.

My primary care doctor is overv30 years in the business and I am only his second case.

October 31, 2023

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