Thank you so much Joel!!! That is really, really helpful information. I'm adding it to the list of things to ask and to make sure to know and do.

Uhhh, I'm not a physician but I've learned a lot in 6 months of being a patient. If trained people tell you something different you should definitely believe them! I have ATTR wild type and know a moderate amount about it. I know very little about other forms of Amyloidosis.
1. I wish I'd asked if the doctor was familiar with Amyloidosis.
Two good questions: What else could it be? Could it be more than one thing?
2. There are two main forms of Amyloidosis: AL (Light chains in blood) and ATTR (TranThyRetin).
Blood tests are used to identify AL. Biopsies and fancy X-rays (PYP and Technetium?) are used to identify ATTR. ATTR is not as common as AL. I had a Coronary Artery Bypass Graft and the surgeon got a heart biopsy that was conclusive. I believe that belly fat biopsies are commonly used to diagnose ATTR.
It is vital to identify what is going on. Early diagnosis and treatment is important. AL and ATTR have much different treatment regimens. ATTR cardiac involvement has much different treatment that other kinds of Heart Failure.
I would agree that getting all the tests scheduled immediately is important given the national shortages of medical staff. I've been diagnosed for 7 months and am still having diagnostic testing done. Fatigue is a very common symptom of Amyloidosis and I find it helpful to limit medical appointments to no more than one a day and three per week. I rarely acheive this goal. Exercise is critical for some kinds of Amyloidosis. My Amyloidosis Cardiologist told me Keep Exercising three times at the conclusion of our first appointment!
Lots of good information on this website as well as Amyloidosis Foundation. I just saw a site new to me: https://www.isaamyloidosis.org. I have not used this site yet.
If you want to get into the weeds you can subscribe to uptodate.com for $60/month. It summarizes medical research and is used by ER docs when they need answers NOW. One can do a LOT of research in one month.
Hope this is helpful
joel

I was blessed I guess because my oncologist automatically covered all the tests I would need and why they were important.
If I was starting over I would get the doctor to schedule all the tests I would need immediately and not wait for one test to be completed before scheduling another. If A Cardiac MRI is needed schedule it as soon as possible.
After my first visit with the oncologist I did not see him again till the 1st chemo treatment at which time the treatment plan was explained and all my future visits were scheduled.
I think I saw the cardiac guy after I had had a few chemo treatments but am not sure.
The cardiac guy will be looking for certain markers that are obtained by blood. samples. Get a copy of any blood results and then read up on them on appropriate site. You can probably find some information on this site.
That is all I can think of now.
Be well. Tell Dad to be positive.