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I’ve Been Told Anytime A Word Ends In OSIS All It Really Means Is That Very Little In Known About It ? True Or False ?
False. It means a condition or state.
Is There A Listing Of Clinical Trial's In The US?
Has Anyone Experience Having Manic Episodes Related To The Chemo, Specifically The Steroids? What Type Of Support Is Availabe?
I usually felt great immediately after chemo. But as soon as the steroids would wear off, the typical would start. The nausea and misery would come on strong as the take home prescription of steroids… read more
A New Clinical Trial For ATTR-CM At Https://clinicaltrials.gov/study/NCT06128629?cond=ATTR%20Amyloidosis&term=Ntla-2001&rank=1
Only for people not taking Vyndamax BTW.
Where Is Tafamadis Becoming Available In England
Will My Amyloids Spread
I believe modern science has the ability to stop or nearly stop the overproduction of amyloid. It’s cleaning up the destruction it causes.
Does Anyone With Wild Type Amyloidosis Have Significant Peripheral Neuropathy Like I Do?
I think I have Al
Can I Get Tafamidis Before It Gets To My Heart ?
I think Tafamadis slows down the amloids clogging up your heart so get it if possible for sure.Jeffrey
I've Been Asking About Diflusinal Use ,is Any One Having Any Luck With It?I Have Attrwt
Sorry I have AL
Taking Vydamax With Onpattro
My insurance has denied coverage for treatment with Vydamax since I’m currently taking Onpattto. They state the two should not be combined. Has anyone found this ?
Michael, my doctor told me that Vydamax was the only thing he would prescribe to me.
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