Connect with others who understand.

Sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Guidelines Crisis Accessibility
Resources
Diagnosis & Information Managing Your Condition Treating Amyloidosis All Resources
About MyAmyloidosisTeam
What is This Site Terms of Use Privacy policy
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do We Have Any Other Drug Like Vyndamax I Have The ATTR Wild Version

A MyAmyloidosisTeam Member asked a question πŸ’­
Mount Airy, MD
November 9
β€’
View reactions
A MyAmyloidosisTeam Member

The above information is very helpful as my insurance will no longer pay for the VYNDAMAX which is over $22,400.00. I cannot afford to pay that price. So I have called my 2 heart doctors to see what is available for me at an affordable price.

November 9
A MyAmyloidosisTeam Member

I have been taking vyndamax for over 3 yrs. I believe its the most effective drug for wild type amyloidosis out there. I also take Jardience , lasix as well and Ive been doing good. Getting in some walking,biking and weight training helps.

November 9
A MyAmyloidosisTeam Member

Yes ,Janet2 from Enhland ..i have cardiac AMYLOIDOSIS ATTR wild type was told this in Jan of 2024. And I have back spine lumbar hip issues and gastro issues amd carpul tunnel.

November 12
A MyAmyloidosisTeam Member

There is a drug called vyndaquel I think it is 4 pills a day.

November 12
A MyAmyloidosisTeam Member

Yes, there are other drugs similar to Vyndamax (tafamidis) for treating wild-type ATTR amyloidosis:

- Vyndaqel (tafamidis meglumine): Another form of tafamidis, approved by the FDA to treat heart disease resulting from wild-type or hereditary amyloidosis
- Diflunisal (Dolobid): Although not officially approved for Show Full Answer

Yes, there are other drugs similar to Vyndamax (tafamidis) for treating wild-type ATTR amyloidosis:

- Vyndaqel (tafamidis meglumine): Another form of tafamidis, approved by the FDA to treat heart disease resulting from wild-type or hereditary amyloidosis.
- Diflunisal (Dolobid): Although not officially approved for amyloidosis, it is sometimes prescribed off-label to stabilize TTR proteins and prevent amyloid fibril formation.

These medications aim to slow disease progression and improve quality of life. Always consult your doctor for personalized treatment options.

November 9

Related content

View All

Is There Anyone Else Out There With Cardiac Amyloidosis ATTR Wild With Heart Failure?

A MyAmyloidosisTeam Member asked a question πŸ’­
England UK
September 17, 2023

Have You Found Vyndamax To Help Or Shortness Of Breath Or Relieve It Altogether? Has Helped Me But I Still Get Winded Walking.

A MyAmyloidosisTeam Member asked a question πŸ’­
Sacramento, CA
August 4

Is Anyone Else Having Trouble Qualifying For The Vyndalink Assistance Program? Seems You Have Many More Hoops To Jump Through. Thoughts?

A MyAmyloidosisTeam Member asked a question πŸ’­
Grand Junction, CO
15 hours ago
What Is hATTR Amyloidosis? 6 Things To Know
What’s the Life Expectancy With hATTR Amyloidosis?
Hereditary ATTR Amyloidosis Age of Onset: What You Should Know
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in