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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Seen The Relationship Between Being Winded And Recent Lung Drains?

A MyAmyloidosisTeam Member asked a question 💭
Carrollton, GA

On two pairs of walks I have noticed significant improvement in breathing and consequently energy soon after getting my lung drained. I am walking on hilly neighborhood streets. On first walk prior to having my lung drained I am winded walking up a steep hill. Next morning I had my lung drained and later in the day upon repeating the same walk, I observed significant improvement in breathing and consequently improvement of energy. I did the same experiment later , before and after getting… read more

June 20
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A MyAmyloidosisTeam Member

And Beverly, that is the $ million question. Why do my blood vessels leak? Give me a month or so to rummage around the Internet to answer your question. I think part of the problem has been my low blood pressure. Cardiologist has gradually raised it up to my family's normal (100+, 60+).

June 26
A MyAmyloidosisTeam Member

In simple terms it’s fluid around the lungs

June 26
A MyAmyloidosisTeam Member

Sally, I am pleased that your pleural effusion is working so well for you. That is great news!

June 21
A MyAmyloidosisTeam Member

Haven’t had those issues but I see a pulmonary doctor for shorten of breath and I receive chest X-rays to check for any lung issues . If you’re having these issues please stay in touch with your specialist on these issues . I pray that you get some relief if you’re having problems such as breathing.
Have a Blessed Day 🙏🏽

June 20
A MyAmyloidosisTeam Member

Wow, Vern. Seems so complicated! But I can certainly see how this procedure must be a relief and a God-send for you! God bless you and your wife, Vern. Will there ultimately be a more streamlined, easier way for the doctors to keep your blood vessels from releasing so much fluid? I certainly hope so. Thanks for such a thorough explanation.

June 26

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Will The Site Be Putting Up Any New Material In The Resources Section? Some Of The Material Is From 2021… Maybe A Little Outdated 🤷🏻‍♀️

A MyAmyloidosisTeam Member asked a question 💭
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Have You Found Vyndamax To Help Or Shortness Of Breath Or Relieve It Altogether? Has Helped Me But I Still Get Winded Walking.

A MyAmyloidosisTeam Member asked a question 💭
Sacramento, CA
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