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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Else Have AL Amyloidosis With Multiple Myeloma Together?

A MyAmyloidosisTeam Member asked a question 💭
Ontario, Canada
February 16
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A MyAmyloidosisTeam Member

I think they treat amyloidosis & MM with the same drugs

February 19
A MyAmyloidosisTeam Member

No but I did have smoldering myeloma and it has dropped down to MGUS

February 17
A MyAmyloidosisTeam Member

You should consult with your doctor. In my opinion, if he is having a positive hematological result why not continue?

February 20
A MyAmyloidosisTeam Member

Yes that is correct. The myeloma levels dropped but there was no change in the tongue so my husband just figured it wasn't helping so he decided to stop treatment in December, but now after reading on your site that everyone is having the same treatment that my husband has had for the last 10 months it may have stopped the production of amyloid. Now we are wondering if we should continue with the monthly maintenance treatments to continue to control the myeloma & maybe the amyloid.

February 19
A MyAmyloidosisTeam Member

What type of treatment are you doing & did it help reduce your amyloid?

February 19

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