Does Anyone Else Have AL Amyloidosis With Multiple Myeloma Together?
I think they treat amyloidosis & MM with the same drugs
No but I did have smoldering myeloma and it has dropped down to MGUS
You should consult with your doctor. In my opinion, if he is having a positive hematological result why not continue?
Yes that is correct. The myeloma levels dropped but there was no change in the tongue so my husband just figured it wasn't helping so he decided to stop treatment in December, but now after reading on your site that everyone is having the same treatment that my husband has had for the last 10 months it may have stopped the production of amyloid. Now we are wondering if we should continue with the monthly maintenance treatments to continue to control the myeloma & maybe the amyloid.
What type of treatment are you doing & did it help reduce your amyloid?
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