Connect with others who understand.

Sign up Log in
Resources
About MyAmyloidosisTeam
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Experienced Tongue And Taste Issues? My Hubby’s Tongue Is Scalloped On The Edges And Nothing Tastes Good.

A MyAmyloidosisTeam Member asked a question 💭
Bay City, MI

He has Al Amyloidosis diagnosed August 2023, just finishing last month of Dara cyborD

March 9
View reactions
A MyAmyloidosisTeam Member

I do have taste issues. Almost all foods taste salty to me. My tongue is also enlarged and I have bitten it so many times I have continued red marks in that area. I hope things improve for your husband.

March 23
A MyAmyloidosisTeam Member

I have the same exact thing. Food taste like crap but a little less like crap than at the very beginning of my journey. I don’t enjoy food like I used to. I just push through because I don’t want to lose more weight. It’s killing me because I’m Italian and we like our food!!!

March 10
A MyAmyloidosisTeam Member

Mary, somewhere in the middle of my chemotherapy treatments I lost my taste ability--came back after treatments ended. Also I ended biting my tongue several times, likely caused by a swollen tongue--that's gone now.

March 9
A MyAmyloidosisTeam Member

Hello Mary10. My husband had these same issues with taste. They were present for about two years. Then, once chemo started his taste changed and he could once more enjoy his food. The scalloped and thickening tongue is a noted symptom of Amyloidosis. My husband had a thickening tongue (not much but enough that it was noted by him) but no scalloped issues.

March 20
A MyAmyloidosisTeam Member

Often my wife says I am tasteless...but I guess that's a different issue.😉
God bless and heal that problem!!😇🙏🏼🙏🏼🙏🏼

March 10

Related content

View All

Started 6th Wk Of Chemo. Suddenly Feeling Good. More Energy, Head Not Fuzzy, More Stamina. Any Answers?

A MyAmyloidosisTeam Member asked a question 💭
lawtence pa

Symptoms Amyloid Peripheral Neuropathy

A MyAmyloidosisTeam Member asked a question 💭
Ireland, IN

I Have Primary Amyloidosis AL And A Very Swollen Tongue. Has Anyone Had This Problem And Gotten Relief? What Helped?

A MyAmyloidosisTeam Member asked a question 💭
Phoenix, AZ
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in