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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What's One Natural Remedy That's Helped In Managing Your Amyloidosis?

A MyAmyloidosisTeam Member asked a question 💭
San Francisco, CA
August 21, 2023
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A MyAmyloidosisTeam Member

Light to moderate exercise daily. Trust in God.

August 21, 2023
A MyAmyloidosisTeam Member

Exercise/Resistance Bands. I use to lift weights regularly but that had become more difficult and because of that, added one more “woe is me” to my list. For me, mental health during all of this is more challenging than the physical and buying a set of resistance bands was a great investment.

August 21, 2023
A MyAmyloidosisTeam Member

I avoid taking ANYTHING that is not prescribed by my oncologist. I don't even take any vitamins until after my chemotherapy is finished unless she approves them . It just isn't worth interfering with what they know works best. Side effects can be difficult to differentiate what is causing what so be very careful

August 22, 2023
A MyAmyloidosisTeam Member

Blood thinners: Nattokinase may break up clots and thin out your blood. For this reason, nattokinase may worsen bleeding and bruising side effects of blood thinners, such as Coumadin (warfarin) as nd Eliquis.

It is not a good idea to take any supplements without consultation from an Amyloidosis specialist. Some over-the-counter herbs can interact in a dangerous way with some of the drugs many Amyloidosis patients are prescribed. Herbs supplements are not regulated, so the reliability and safety of those substances is an additional risk factor.

August 21, 2023
A MyAmyloidosisTeam Member

Eat as healthy as possible and regular exercise to your comfortable limit will improve your overall well being both mentally and physically.

August 21, 2023

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