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Amiodarone And Vyndamax?
I have been taking vyndamax for about four weeks. I also have heart arrhythmias. The Dr suggested a low dose of amiodarone for the arrhythmia (200mg). Does anyone have any experience/suggestions with using this drug with vyndamax
Amiodarone side effects sound troublesome to me.
I take Dofitilide for arrythmia, and will be starting Vyndaquel soon. My doctors said there would be no problem.
My Question Like This In Group Have A Member Who Is Feeling Good After The Medicine .
hi group members sorry my English not good. I am try to translate and ask my question. Sorry for my English I am 35 years I have a HTTR . my health problems start after the pregnancy. My son born 2016. my son burn her leg. after that start my health problem. I am feeling very bad. I am start vomiting, nausea constipation dizziness heart problem and walking problem nothing help me for doing good. We are trying everything. We are see more doctors, but the doctors doesn’t understanding what’s… read more
Just a side comment. Gayane, you are brave to communicate to us in English when your base language is something else. It would be very difficult, with 'tables turned', for me to communicate in your… read more
Do Any Of You With Wild Type Attr Take Beta Blockers?
My husband's doctors are recommending he no longer take beta blockers, specifically metatoporol. He has taken this for years for PVCs. What are your doctor's saying about this? Does anyone know what the trouble with taking beta blockers is?
My doctors have not suggested them to me so i can't really respond one way or another. I really don't like taking pills so i only take what is prescribed..
Stage For Wild Type Amyloidosis. Any Others In That Category?
I first discovered the wild type amyloidosis through a heart biopsy in July 2019. Previously I had four years of searching with doctors each stating that I had COPD due to my difficulty in breathing. I am beginning my fifth year after diagnosis dealing with the wild type amyloidosis. . Due to my labored breathing even in a rested position my heart failure surgeons believe that I am in stage four. I was hoping there might be some others that are in this journey with me. I
would be grateful for… read more
What medication are you taking?
My Husband Has Wild Type ATTR CM, I Would Love To Know What Amyloidosis Center Or Dr, You Have Seen. It’s So Hard To Find One!
Not knowing where you live, I will just comment on how I established my team of doctors. Once my family doctor realized that I had a problem, he linked me to a lung doctor and a liver doctor. Lung… read more
What Amyloidosis Symptoms Do You Have That You Didn’t Expect?
mine too
needing to use assistive devices to walk
Vitamins And Supplements
I am new to this Amyloidosis thing. I would like to know what vitamins and supplements people with this disease are taking that they find helpful. Thank you in advance.
Hi Kim
I am on vitamin D and A. I would ask your doctor, because they will want to know what over the counter drugs you are taking. If you are on treatment, the herbal, or vitamin supplements can be… read more
Will Dolobid Help Mifolding Before It Gets To My Heart I Have Attrwt Not In My Heart Yet As Of 4 Months Ago
Joseph, I am entering my fifth year after diagnosis with the wild type. .This is what happened with my wild type amyloidosis.The mal folding of the proteins coming out of my liver unfortunately form… read more
Is There A Genetic Test For Familial Amylodosis? Has Anyone Had It Done? Results?
I would like to know the place, web site, etc. where there may be a genetic test for familial amylodosis. Thanks in advance.
Our heart Dr ordered a genetics test, from Amber genetics. They sent a test to our home.
Are There Others Who Are Aware Of The Amyloid App For Cellphone? Helpful? Share With Others. Share With Doctors 😇
My humble opinion:
The more that app is shared the better 😊
Very helpful
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