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Is Diflusinal Aside Of The Posible Side Effects As Good As Tafamadis
Has Anyone Heard Anything About Astra Zenaca's New Medication Eplonstersen For ATTR?
I'd like to get a little more information on it before we see my husband's doctor in December.
Has Anyone Noted A Change In Their Feet? Four Years Ago I Had Sudden Change That Felt Like A Thick Layer Of Cushioning On Bottom Of Feet.
This happened about the same time that the muscle between thumb and forefinger disappeared overnight. On both hands.
I'm not complaining about the feel of extra cushioning but it is as strange as my now thickened tongue.
Do some research on oral amyloidosis.
Anyone Here In These Studies:
Extraction/degradation of amyloid
There are currently two monoclonal antibodies under investigation for the elimination or removal of amyloid fibrils from tissue: NI006 (Neuroimmune; CPHPC) and NN6019-0001 (formerly known as PRX004). They will help us understand if the hypothesis of the removal and improvement of the function is confirmed
After searching for new info, i think most of those studies have completed. That is why the reports are written upon completion and published. What we need to find are upcoming 3rd level studies… read more
Doctors Are Telling Us Our 86 Yr. Old Mother Has Amyloidosis That Has Affected Her Kidney And Brain. Can This Be Hereditary?
It depends what type of Amyloidosis she has, there is one that is hereditary. If she has the hereditary type you can be tested to see if you have it.
When The Lab Draws Blood, What Are They Monitoring?
I have AL Amyloidosis. I go in for a chemo treatment (I start Monday) what are the technical terms and abbreviations for what they are looking for when they draw blood? Thank you, Mike 9
The electrophoresis is your free light chains. That checks your kappa lambda levels for AL.
The cbc complete blood count is to check your red blood cells or white blood cells among other things.
A… read more
Is There Anyone That Was Diagnosed With AL Amyloidosis And Has Relapsed?
What treatment options are being offered to you/are you doing? The organ affected is my kidneys.
Thankfully, my wife’s insurance has covered almost everything, they have done to me except the deductible on prescriptions. If we didn’t have the insurance, we would have lost our home, cars, boat and… read more
Suggestions For Traveling
I’m trying to get an idea what i should do while traveling, what to avoid, how and what to eat, dealing with meds, what ever input anyone has would be helpful
Thanks for the info, i’ll keep it mind while i’m away
Is Consuming Green Tea Indicated To For People With HATTR?
Read And. Show Your Doctors
https://www.sciencedirect.com/science/article/p...
As far as we know thus far...
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