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What's On Your Holiday Wish List That Could Improve Your Life With Amyloidosis?
Yup!😇
How Long Should I Wait Before Calling In For A Refill Of My Prescription.
Thank you so much.
Has Anyone Had A Barostim Procedure?
Has Anyone With WATTR (Grade 3) & A-flutter Done A Cardioversion? Success??
So far it is good.
Do Any Of You Have The Breathing Attacks That Cause Your Bladder To Let Lose ?
I definitely need to control my salt intake . I love to cook but fry a lot . I use olive oil but it’s still fried . I’ve been having bad acid reflux for months now . I’m really going to watch what I eat from now on . That was a good read . First thing I’ve read about diet on this disease . I’ll be down at Stanford for more tests Monday and I’ll ask more about a healthy diet . But our main concern is to determine what kind of Amyloidosis I have and where . I could use any advice about how to live… read more
Heart biopsy procedure sucks but only last a few minutes. I can’t believe they do it while patient is awake, so yes it sucks. The bone marrow biopsy is piece of cake. My brother did faint however soon… read more
I Have WtTTR. What Experience Is Everyone Having With Neuropathy? How Do You Find Relief If You Do?
I started taking over the counter Turmeric with black pepper extract. Seems to help
Gastro Problems With "wild Type" Disease
"wild type" Gastro problems-does anyone have? Any suggestions on what to take? I have been on Pepcid, but not much help Jeffrey
Zophran
What Are The Effects On Eyes?
Hi Daniel! I’ve got wATTR-CM. One of my symptoms is that I’ve developed “floaters” in both eyes. They don’t bother my eyesight too much. Ophthalmologist determined that if they do bother me it’s a… read more
IHAVE BEEN TAKING DIFLUSINAL FOR 3 MONTHS AND I AM MORE STEADY AS I WALK .I THINK ITS BECAUSE OF THE DIFLUNISAL
In Assessing Stages Of AL, What Is The Relationship Between Urine And Serum FLC Concentrations?
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