Connect with others who understand.

Sign up Log in
Resources
About MyAmyloidosisTeam
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do You Follow A Specific Diet To Help With Amyloidosis?

A MyAmyloidosisTeam Member asked a question šŸ’­
San Francisco, CA
September 23
ā€¢
View reactions
A MyAmyloidosisTeam Member

I'm not following a special diet, just a mix of Chinese, Mediterranean, and Western. I have been avoiding or minimizing sugar and salt for years, so nothing has changed. Alcohol consumption has been sporadic and minimal for years, but I don't abstain. The occasional glass of cider or wine several times a month probably is not going to kill me, but it will make life a little more enjoyable. In the end, something is going to kill me, and it might as well be an occasional pleasant beverage. Better than getting hit by a bus. No sense in dying before I'm dead!šŸ˜€

September 23
A MyAmyloidosisTeam Member

I think everyone is trying their best! I am grateful for each new day and have been an advocate for health and fitness. I eat very healthy, but portion control could be better. I do enjoy Red Wine because I call it the blood of Christ! My son makes his own and I do indulge on a rare occasion.
After all the wok I put into my health, learning about amyloidosis has been an obstacle for me. I have been going to a Cardiologist since I was 40 for the sole purpose of beating the odds but now, I am right in it!
I do train with resistance (weights) and I make an effort to focus on cardiovascular health as my purpose.
Hope everyone is making progress in beating their Amyloidosis.

September 23
A MyAmyloidosisTeam Member

We eat lots of wild caught seafood each week Medit. Diet, Italian, French, Greek, etc. zero alcohol low sodium wherever possible.

September 23
A MyAmyloidosisTeam Member

Great Mitch! Walking over a mile is the solution as far as I am concerned.

September 24
A MyAmyloidosisTeam Member

Low salt is my goal (amount I don't know). I normally look at the labels to determine whether to eat the product. Fish is regularly eaten, though not every day. Low fat meats are the other pleasure. I regularly have fruits and vegetables especially at dinner and lunch. Whiskey or red wine occasionally, a little more than once a year. I was told the most recent test was a turnaround for my heart with my most recent test. My original diagnosis was hereditary Amyloidosis, and I have outlived the person (my mother) who had the same diagnosis, by two years so far. I regularly exercise with manual labor (moved a load of dirt to distribute and seed an area of the lawn - and walking, even though family thinks I should not do the manual labor because of my age. I am presently on Vyndamax (tafamidis) and active whenever possible though I had a swollen right leg recently which hindered my walking.

September 23

Related content

View All

I Have Very Severe Poly Neuropathy What Can I Do? I Have To Use A Walker Nerve Damage Re EMG. Sudden Severe Pain Back Of Legs

A MyAmyloidosisTeam Member asked a question šŸ’­
Fresno, CA

What Is The Best Diet To Follow With AL Amyloidosis And What Can You Do To Improve Appetite?

A MyAmyloidosisTeam Member asked a question šŸ’­
Rochester, MN

What Foods Can We Eat?

A MyAmyloidosisTeam Member asked a question šŸ’­
Vero Beach, FL
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in