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Does Anyone Have This Disease In Their Voice Box? I’m Curious, Because That’s Where Mine Is Located

A MyAmyloidosisTeam Member asked a question 💭
Winkler, MB
August 10
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A MyAmyloidosisTeam Member

I also have localized laryngeal amyloidosis.

September 9
A MyAmyloidosisTeam Member

So far it’s been ok, my voice is no stronger but I do have less pain and discomfort after the scraping

September 9
A MyAmyloidosisTeam Member

Hi George - There is no meds or anything that I am aware of that will slow it. I have an article that says it usually stops growing after 7 years or so on its own.
For now, controlling my acid reflux seems to be the best remedy for me. Acid reflux usually irritates it more and causes pain and hoarseness so i’m taking omeprazole and famotidine to control it.
As for surgery, my doctors all advise me to leave it alone. They are saying the surgery risk is bigger than the reward. I disagree.
How is your surgery (scrapping) working out for you?

September 9
A MyAmyloidosisTeam Member

Hi Ray, is there any medication that you’re taking for slowing or trying to cure it? I had my vocal cords scraped to remove most of the build up.

September 9
A MyAmyloidosisTeam Member

Yes, amyloidosis can affect the voice box (larynx). Primary localized laryngeal amyloidosis is a condition where amyloid deposits are found in the larynx, leading to symptoms such as hoarseness and dysphagia (difficulty swallowing). If you have amyloidosis in your voice box, it's important to work closely with your Show Full Answer

Yes, amyloidosis can affect the voice box (larynx). Primary localized laryngeal amyloidosis is a condition where amyloid deposits are found in the larynx, leading to symptoms such as hoarseness and dysphagia (difficulty swallowing). If you have amyloidosis in your voice box, it's important to work closely with your healthcare provider to manage your symptoms and monitor your condition.

August 10

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