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I Have Wt ATTR-CM. Any Of Us With Afib/Aflutter Arrhythmias To, How Many Are Taking Tikosyn To Control It?

A MyAmyloidosisTeam Member asked a question 💭
Point Pleasant, NJ
June 22
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A MyAmyloidosisTeam Member

This is what I try to do about getting tired. That happens around 1:30 pm EST everyday.
Here are some tips to try to conserve your energy throughout the day:
Try sitting instead of standing for certain activities like fishing or gardening. I sit on a 5 gal pail with a soft lid.
Make sure you’re eating and drinking enough water throughout the day.
Take short naps or rest periods as needed — the recommended length is 10 to 30 minutes. I often exceed that by an hour or two.
Give yourself a certain number of tasks to do within a day that you have the energy for — don’t try to fight your fatigue. I’m the best in the morning or when i wake up.
Limit your caffeine intake for a few weeks and see if your fatigue improves. I drink only non-alcoholic beverages. It helps a lot and there are some good tasting NA beers and Italian and German wines available now.

June 22
A MyAmyloidosisTeam Member

Billy, me too. My last ablation was 8/2023.

June 22
A MyAmyloidosisTeam Member

Thanks. I’ve had 2 ablations. Hopefully this is supposed to help control the arrhythmia and relive my tiredness.

June 22
A MyAmyloidosisTeam Member

Billy, I have been on Dofetilide (Tikosyn) for 2 years as of this week. Post PVI cardiac ablation #1.

June 22

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