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I Need To Find A Dr. Knowledgeable About HATTR. I’m Currently Going To Jacksonville Mayo Clinic For Testing. I’m In Orlando Fl Metroplex
Had yesterday Cardiac Amyloidosis injection and Scan also have the Holter Monitor Testing until today. Not in any medication yet. My symptoms are loosing about weight (50 pounds) carpal tunnel, neuropathy in lower extremities, frequent UTI’s I urgently need to find a Dr that knows and understands this condition as my primary physician recommended.
Sounds like you’re where you should be. I’ve heard good things about the Mayo Clinic
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