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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My Husband Has AL With An Enlarged Tongue Does That Mean The Amyloid Is In His Digestive Tract Or Is That Just A Symptom Of The Disease?

A MyAmyloidosisTeam Member asked a question 💭
Ontario, Canada
February 19
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A MyAmyloidosisTeam Member

Well then most likely I would assume that is the reason for the enlarged tongue. A reason to continue with treatment. Use every tool available to fight!

February 20
A MyAmyloidosisTeam Member

Probably in his GI tract but you really need to have an endoscopy and colonoscopy which specifically test for amyloid.

February 19
A MyAmyloidosisTeam Member

They have never suggested that. The lip biopsy confirmed AL Amyloidosis.

February 19

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