I do not have CCA but my sister does and although the doctors told her it would not make her tired that is not her experience and is not the experience of the Facebook users with a CAA diagnosis on site she is on Facebook.

Sister said you should join Cerebral Amyloid Angiopathy on Facebook where there are large number of people with your condition. She also said there is a couple of groups on the site. One is for patients only and the other is open to basically anybody. Her strong recommendation is for you to join the people that actually have the condition, the patients.

To join you must give your full name but only the people in that group can see the names.

So look for Marilyn Hersey. She lives in Alabama but could not remember if she gave her state or not and any event she has moved since she joined the group.

I pray daily for all of us with a Amyloidosis or CAA.

Jim

I've had cardiac amyloidosis for 8 years. My first symptom was shortness of breath.
It just makes sense that as the walls of your heart get thicker it's not going to pump as much blood as normal which causes shortness of breath.

I’ll say a prayer for you!