Dear Amyloidosis Team. I Live In Berlin, GERMANY. Do You Have An Address Of A Medical Centre Or A Specialist, I Can Contact?
I live in Berlin, GERMANY. Do you have an address of a medical centre, specialist, or help group I can contact?
Hopkins in Baltimore also has an exceptional group of amyloid dr’s. They are now starting an amyloid only dept in the hospital. Now we will not all have to fight over the same dr as there will be several as will having access to those resources be greatly improved. It will be nice to see the improvement on already one of the best amyloid hospitals in the country and probably the world. I am a proud student/alumni of the new and class of 2012 respectively.
I have been told that the Charité-Universitäsmedizine Berlin is a well known Klinik.
Royal Free Hospital in London and Queen’s in Russell Square London
Two of the best here in the States are:
Boston Medical Center
www.BMC.org
(Phone number can only be seen by the question and answer creators) Amyloidosis Center
Mayo Clinic
www.mayoclinic.org
Notes:
(1) Mayo Clinic has a campus in London
(2) Both Boston Med and Mayo Clinic are affiliated with research centers and teaching hospitals around the world
(3) I recommend that you research teaching or university hospitals as new amyloidosis centers are rapidly being formed
My Husband Has Wild Type ATTR CM, I Would Love To Know What Amyloidosis Center Or Dr, You Have Seen. It’s So Hard To Find One!
Husband Is Newly Diagnosed With AL Cardiac Amyloidosis. Looking For Recommendation Of A Doctor Or Program At An Amyloidois Center.
ATTRwt : Has Anyone Verified Hearth Thickness After Using Tafamidis By Echocardiogram Versus The Thickness Before The Therapy?