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New Here And Had My First Appointment With Hematologist/Oncologist Yesterday. Questions!
My labs showed IgA levels 953
M protein .88
IgA Kappa in the beta region with monoclonal spike
Blood in urine
Very tired
Lost 28 lbs in 6 months
Neuropathy in both feet
Back pain
Low grade fevers
Chest pain
Shortness of breath
High heart rate
Raised rashes on face and arms
Itchy feet/back
Anus pain
Swollen tongue with ridges
I had an autoimmune kidney disease as a kid. Went in remission 25 yrs ago.
I want to think this is not Amyloidosis, but doc said he suspects this. Getting Bone… read more
I think you should try to remain positive. There are plenty of new drugs in their last phase of trials that could really help all of us. I hope you don’t have it. I will make sure to keep you in my prayers. You’re too young to be this sick 😿
Are you familiar with nattokinase as a potential treatment?
You got this Olivia!
I certainly will. Just was told my kappa/lambda free light chain ratio was very high at 12.97. The normal ranges are between 0.26-1.25.
Thank you for the prayers!
Please let us know the diagnosis If you get one sounds like your Dr is on top of it prayer out for you
Slight Remission No Treatment
After 24 CyborD +D Treatments I’m Still Not In Full Remission, Or CHR. I Have AL Amyloidosis. What Is Next? How Can I Get Into CHR?
Need Direction, PLEASE-Could This Be Amyloidosis?
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