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Diagnosis Expectations
My symptoms are neuropathy, tendonitis right shoulder and left hand, constipation, nausea, enlarged tongue, heart palpitations, shortness of breath, recurrent urinary tract infections, chronic sinusitis, ankle swelling, and fatigue.
Test results
Kappa elevated, lambda normal, ratio is 17.4.
M-spike noted in serum, not seen in urine.
Bone marrow biopsy normal.
Tongue biopsy negative.
GFR has dropped from 96 to 51 in 12 months.
Cholesterol has increased from 98 to 295 in 12 months.
… read more
Wish I could tell you something. We are still awaiting all the test results and what treatment my queen will need to do.
Keep on your Doctor.
They don't always see the whole picture either.
Trust your body and what it tells you.
Hopefully you get the answers you need.
Godspeed
I know this is not an answer but a question what type of Amyloidosis do you have?Looks like some Drs don't seem to care.
If you’re not happy with what you’re hearing from your doctor find another one! You need a doctor who is going to be aggressive enough to stop the amyloid in its tracks!
I Saw An Amyloid Specialist And Exhaustively Went Over My Symptoms. He Was Sure I Have Amyloidosis. Tests Show I Do Not. What Can It Be?
Did Anyone Else Lose Their Sense Of Taste After Diagnosis Of Amyloidosis?
Is It Necessary To Get A Amyloidosis Specialist? My Cardiologist Hasn’t Told Me What Stage I’m In , I’m Wild Type With Over 560 Proteins Uri
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