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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Is Your Primary Hurdle To Overcome In Dealing With Amyloid?

A MyAmyloidosisTeam Member asked a question πŸ’­
Washington, DC

What physical ailments does Amyloid present ?

June 24, 2023
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A MyAmyloidosisTeam Member

I get fatigue , tired , problems being out of breath and exhausted. My normal day is to try to keep active, but some days its thee impossible . All so I suffer with insomnia , constipation , and loss of appetite . I had to have electrolytes taken on my hands and I was diagnosed with carpal tunnel in my right hand and have to have surgery. I’ve been reading symptoms on hATTR and what I’ve been learning is that these issues I have are associated with amyloid. There are different types of amyloid but the one I’ve been diagnosed with these are the problems I have . I pray that this helps you with your questions asked . Have a blessed day today , stay strong and know that you’re not alone .
πŸ™πŸ½πŸ™πŸ½πŸ™πŸ½πŸ€—πŸ€—πŸ€—

June 26, 2023
A MyAmyloidosisTeam Member

Depends on your diagnosis. For my husband (ATTR-wild type) early diagnosis (56 years old), overall not feeling well, dizziness from a seated to standing position, breathlessness upon exertion (as a former athlete this is difficult) or at times for no reason needing to sigh for a deeper breath, fullness after eating and/or drinking too much, unintentional weight loss, and fatigue. These are some of the symptoms that my husband has randomly. Prior diagnosis, double carpal tunnel syndrome (surgery on both). Hope this helps.

June 25, 2023
A MyAmyloidosisTeam Member

GI issues

June 24, 2023

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