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Just joined. Have asked questions but no replies. Just received hugs and added to teams. I am not very good with technology so may be missing something. Is there any real help or feedback on this site?
Yes there is. Lots of information under Resources and shared experience from members. Perhaps a friend or family member can guide you the first few times? All three best to you!
Joel
I've Been On Tafamidis 3yrs Now. Thought I'd Be A Goner By Now. Must Be Working . Anyone Else Passing The 3yr Mark On Tafamidis?
Husband Is Newly Diagnosed With AL Cardiac Amyloidosis. Looking For Recommendation Of A Doctor Or Program At An Amyloidois Center.
Symptoms Amyloid Peripheral Neuropathy
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