I can I am just trying to figure out where to start. I thought I should have him go there. I have said that for a while

Hi Sarah!
I am not sure where you live. But he needs a cardiologist and hematologist who knows about amyloid. That is the most important start.
As far as RX coverage, many pharma's have programs to help with meds.
Most important, to find these specialists to get the right diagnosis.

How far are you from Mayo? It would be a good idea, to call them and asked to speak to the amyloid team. He could be seen there, and treatment could be done locally.

I would be a little concerned also. Getting diagnosed and starting treatment is key. Did you try the ford clinic?

We live in Lansing Michigan. We are trying to get into a cardiologist that is more knowledgeable about it and just got referred to the hematologist. We are on a waiting list for the hematologist. The first available is July. and my parents get so worried about the doctors being covered by medicare that they are scared to go anywhere else. I do hold medical power of attorney. I am concerned that waiting till July is going to kill my mom and dad. They are bot very scared