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Is This Early Stage?
I have an enlarged liver (19cm) and protein in my urine but not showing up in my blood My basic blood work is otherwise normal. I am waiting for my provider to confirm the diagnosis.One year ago I lost 1olbs weight and I have neuropathy in my toes but no other obvious symptoms. Does this sound like early stage amyloidosis?
The protein in your urine may be an early indicator. Glad you caught it. My urologist missed this on my annual visit--noticed it only with hindsight. The timing conflict with amyloidosis is (1) get doctors to acknowledge you have it, and (2) get treatments started early--per several articles, early treatment gives you much better odds for success. Concluding evidence for me was the result of a kidney biopsy. Then it was a big push to get treatments started--my wife and I were pro-active on this.
Additional thought to earlier post: With hindsight I can specify when to the week I became infected with AL almyloidisis. In late Sept 2020 my VO2Max started a long dive . VO2Max is available from iPhone/Apple watch combo.
I shall thanks Loise
Thanks Vern and yes I am being proactive
After Diagnosed, Pacemaker, Carpal Tunnel Surgery, Not Able To Walk On Own, So Much Swelling, How Long Before Itβs The End Time.
I've Asked My Hematologist What Stage Of AL Amyloidosis I Have, But I Think She Forgets, Does Anyone Know How I Can Figure It Out?
Vyndaqel
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