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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Is Expected Post 20 Infusions Of Dara+VCD - On Remission From AL Amyloidosis Cardiac?

A MyAmyloidosisTeam Member asked a question 💭
Indian, AK

Though the Hematologic Response to Dara+ VCD seem good for Hematologic Response in last 6 months but the bio-markers, MRI reports, ECG reports are not encouraging for cardiac health. How to handle the situation that is close to Heart Failure, Hypotension, and allied health conditions.

April 1, 2023
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A MyAmyloidosisTeam Member

I have just 2 more Dara injections then the 24 months is finished. My heart is much better than during the VCD. Now level1/2 heart failure. I am on amiodarone to stop fibrillations and Pradaxa to prevent blood clots. Also on Jardiance, furosemide and spironolactone. The light chains number is not as low as I'd like - 27-28 when upper normal is 26.So I'm wondering what will happen.

April 8, 2023
A MyAmyloidosisTeam Member

Thanks a lot but I am 65 +

August 26, 2023
A MyAmyloidosisTeam Member

Who is your Doctor for AL Amyloidosis, Cardiac ( Hemat & Cardiac)

August 26, 2023

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