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Does Anyone Here Have Primary Cutaneous Amyloidosis?
I am looking for a doctor who can effectively treat cutaneous amyloidosis ulcers. I didn't see anyone on this site with this diagnosis. Getting reoccurring ulcers on the amyloid deposits.
I see you are in Connecticut. The Boston University Amyloid Clinic has Dr. John Berk, who specializes in localized amyloidosis. I suggest that you go see them for an evaluation. www.bu.edu/amyloid
Wild type amyloidosis can be confirmed with a PYP technetium 99 scan. This isotope is absorbed by the amyloidosis tissue.
Do you have a amyloid specialist near you?
I Have Very Severe Poly Neuropathy What Can I Do? I Have To Use A Walker Nerve Damage Re EMG. Sudden Severe Pain Back Of Legs
Skin Amyloidosis
My Husband Has Been Just Diagnosed With Wild Type Amyloidsis. He Has A Pace Maker (Bradycardia ) Aorta Valve Replaced And Mitral Valve Repa
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