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On Your Road To Diagnosis Did Anyone Have A False Negative Fat Pad Biopsy Result But Still Have Clinical Systemic Amyloidosis Symptoms?

A MyAmyloidosisTeam Member asked a question šŸ’­
Baker City, OR
October 30, 2022
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A MyAmyloidosisTeam Member

Yes! I did but my cardiologist did the definitive PYP SCAN and Iā€™m positive for cardiac Amyloidosis. Most all PYP Scans are done in hospital or major medical center like a university. Ask your doctor for it! Negative fat pad biopsy is NOT the definitive on cardiac Amyloidosis!

November 20, 2022
A MyAmyloidosisTeam Member

Still today , after 7 months from a sure diagnosis based on a cardiac biopsy, the fat results negative, I got ATTRwt.

November 19, 2022
A MyAmyloidosisTeam Member

No after Chest X-ray, Heart Catheterization, Ultrasound,
MRI showed it

November 5, 2022
A MyAmyloidosisTeam Member

Absolutely! I have several autoimmune and primary immune rare diseases. I finally pushed for genetic testing at INVITAE (N. California lab).

November 3, 2022

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