On Your Road To Diagnosis Did Anyone Have A False Negative Fat Pad Biopsy Result But Still Have Clinical Systemic Amyloidosis Symptoms?
Yes! I did but my cardiologist did the definitive PYP SCAN and Iām positive for cardiac Amyloidosis. Most all PYP Scans are done in hospital or major medical center like a university. Ask your doctor for it! Negative fat pad biopsy is NOT the definitive on cardiac Amyloidosis!
Still today , after 7 months from a sure diagnosis based on a cardiac biopsy, the fat results negative, I got ATTRwt.
No after Chest X-ray, Heart Catheterization, Ultrasound,
MRI showed it
Absolutely! I have several autoimmune and primary immune rare diseases. I finally pushed for genetic testing at INVITAE (N. California lab).
Slight Remission No Treatment
Is Anyone Else Having Trouble Qualifying For The Vyndalink Assistance Program? Seems You Have Many More Hoops To Jump Through. Thoughts?
Tafamidis Therapy Prophylactically?