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Does This Disease Cause Frequent Urination?
I get upat least 5 times during the night
what time do you take you take your diuretics ? I take mine 8am and 4-5 pm they can work for 6 -8 hours I only get up 1 time now
mary smith
Has Anyone Exprerienced Blackouts/fainting During Your Chemo?
Spouse on week 10 of chemo and has started fainting/blacking out. Has happened four times in last week. Have reached out to our contact person at the treatment centre two days ago but not response yet (perhaps because of weekend). Next treatment is Tuesday coming. Will discuss with injection team before getting injection(s). My spouse when he faints / blacksout, goes into a 'spaced' out period for a minute or so before returning to a communicative condition. Then says he doesn't know what… read more
For The Team Members Who Have IBS Type Symptoms.
For the team members who have IBS type symptoms. Have you tried an app called Nerva. It is hypnotherapy but they also have FODMAP do's and don't. I am enjoying them.https://try.nervaibs.com/get-star
I Have AL Amyloidosis Of The Heart And Tongue. Is There Anyone Else Dealing With Both Of These Issues?
The tongue affects my eating, swallowing, chewing, talking and how I sleep at night.
Also have multiple sclerosis, sleep apnea, irritable bowels and prostrate issues. Very difficult to manage everything correctly when one thing can mess up something else.
This a real challenge. Still trying to find a good ENT. Also am losing my life long gastroenterologist at the end of the month of July because they no longer are accepting my United Healthcare insurance.
Does anyone have Amyloid in the… read more
Get in touch with Kim on here. She has problems with her tongue also
Have Amyloidosis In Bladder, Wondering What Type This Would Be Labeled?
Have in Bladder for year and a half, haven’t needed treatment!
Great Information Thank You So Much Paula!😎
Has Anyone Experienced A Loss Of Appetite With Any Treatments, Especially AMVUTTRA® (vutrisiran)?
Let us know how this works for you.
Is Anybody From Europe Here? I Would Love To Hear Experience In Treatmen In Europe (we Are From Croatia).
Who Has Wild Type Amyloidosis? Are You Feeling Worn Out? When Were You Diagnosed?
Looking to more people with wild type.
I have fatigue that is, strangely enough, helped by aerobic exercise. Follow your doctors advice before starting exercise.
Has Anyone Gone To A Hematologist At Hackensack University Hospital In NJ?
What Is Life Expectancy After Diagnosis With Httr Amyloidosis
Thank you so much for your response.
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