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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Have AL Amyloidosis Of The Heart And Tongue. Is There Anyone Else Dealing With Both Of These Issues?

A MyAmyloidosisTeam Member asked a question πŸ’­
Lawrence Township, NJ

The tongue affects my eating, swallowing, chewing, talking and how I sleep at night.

Also have multiple sclerosis, sleep apnea, irritable bowels and prostrate issues. Very difficult to manage everything correctly when one thing can mess up something else.

This a real challenge. Still trying to find a good ENT. Also am losing my life long gastroenterologist at the end of the month of July because they no longer are accepting my United Healthcare insurance.

Does anyone have Amyloid in the… read more

July 5, 2023
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A MyAmyloidosisTeam Member

Get in touch with Kim on here. She has problems with her tongue also

July 7, 2023
A MyAmyloidosisTeam Member

Are they sure that your tongue situation is the AL and not MS?

July 5, 2023

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